The Alpha-1 Channel

Alpha-1 All The Time!

Our Mission...

The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency.

Q: What is Alpha-1?

A: A hereditary condition which can cause lung disease in adults and liver disease in people of all ages.

Alphas and carriers, now's the chance to be heard

A letter has been mailed to Alphas and Alpha-1 carriers across the United States, inviting them to answer a survey on the needs of the Alpha-1 community. The survey, a joint project of the Alpha-1 Foundation and Alpha-1 Association, asks for opinions on our programs and any unfilled needs. The survey will help both agencies to understand if Alphas are having problems accessing medical care, and also help us advocate for Alphas as health care reform continues.

The survey must be completed quickly: The deadline is Friday, Jan. 21.

The survey can be completed either online or, by request, on paper. For questions about the Alpha-1 community survey, contact Linda Rodriguez at lrodriguez@alpha-1foundation.org or 1-888-825-7421, Ext. 217.

0 comments:

Post a Comment